Hello! Hope you are all well. This is a FAB idea and thanks to Marina and Valeria for organising it. Did not get in to see Antonya today, however from what she was saying yesterday Bunty (Yvonne) was going to be in all day - giving her a bit of a pampering session - legs, feet and hands. Hopefully she will feel like a new woman afterwards. Received a text this morning from Antonya and she said she had a better nights sleep - thanks to Doc Heyward (looking good) making sure she gets a sleeping tablet each night. Love to everyone.
Hello! So Sheena joined us! Hope the others will follow! and Antonya herself too! Good to have good news about her, hopefully she will have another good night of sleep. I have made it back to Rome and making acquaintance with my flat again... Speak soon, take care! Marina
Hello everyone again I just wanted to add the reference to www.nosurrenderbreastcancer.com which seems to be a mine of information, ideas and support. Kim wants to add a link to the Moonwalk, I think it is a great idea! Valeria, can you do something about this? Bye For Now, Marina
Hi, the following is from the nosurrenderbreastcancer website. It is for Antonya, but also for all of us to understand. Anyone of us could be next. But, there is HOPE and we have to work on it.
Triple Negative Breast Cancer If you have been diagnosed with triple negative breast cancer then you have also been given a less than enthusiastic prognosis for a bright and happy future. This is simply not true. First, the name it has acquired is terrible. It sounds foreboding. Here is what it means:
You tested negative for estrogen and progesterone receptors. This means that your body’s naturally occurring hormones are not feeding your cancer cells. Because of this you cannot benefit from anti-hormonal drugs such as Tamoxifen and Armidex. Why? Because you don’t need them! Your cancer is impervious to estrogen and its effects so you do not need a drug to stop the estrogen and progesterone in your body.
That is two negatives. Here is the third.
You tested negative for the Her2/nue oncogene. This means your cancer does not overproduce a protein that promotes cancer growth. This is a good thing. You do not want to be Her2 positive. It is good to be Her2 negative. It also means you cannot benefit from Herceptin, the anti-Her2 drug. That is fine. You don’t need it so why should you take it?
So there are your three negatives.
Here are your positives:
Your tumor responds better to chemotherapy than tumors that are estrogen and progesterone positive. Chemo works better on you.
If you remain disease free for four or more years the chances are your cancer will not EVER return.
You do not have to take endocrine therapy drugs that have a whole host of side effects that are not pleasant.
And there is emerging research every day into this type of breast cancer that is making the “poor prognosis” moniker a thing of the past.
Please do not despair with this diagnosis. It CAN be beaten.
Hi! Just been in to see Antonya tonight and she is 'looking good'. Didnpt have such a good night last night, however her Chemo started tonight - Carboplatin/Taxol and she is very positive about it. Glad you got home safely Marina. Valeria I have sent you some photos taken while Antonya, Daniel and I were in Rome - hope you get them OK. If not send me a message and I will try again. Love to everyone. Sheena xxxxx
Hi Sheena! I tried to chat with you while you posting blog! AnyWay, I'm trying to arrange an album for photos and hope to give you more useful comments to include photos in the blog. That's also for Kim, of course! Lovely have news of Antonya. Thnks a lot. Valeria
Hi Sheila here. Went to see Antonya tonight also and she is very positive about new chemo. She is saying "let the battle begin".
Daniel fast asleep but at 9.30 pm asking why he had to go to bed when Calum (who is 15) was still up!! He is coming out with some really funny comments and is very settled at moment.
Hi All Went to see Antonya in Hosp today she was having her chemotherapy and she was feeling very positive about it!! Her mum and sister have come down from up north and are going home tomorrow. Antonya is looking great at the moment. thanks to the steroids.... great to be able to speak to you all, and so nice to know that she has such true friends, will speak soon love June
Hi, Marina here! Good morning to you all! Good to have news of Antonya, I have been rather busy since I got back and going to Slovenia tomorrow. Pass on my greetings and good wishes, but I also hope to txt her soon. Take care, Marina
Hello! I was in to see Antonya today - she had a bad morning however once the drugs kicked in she was much brighter. I think the girls in the ward - Emma and Bev keep her going and they all have such a good laugh - especially when they are deciding on which song to choose for Hospital Radio. Also visiting was her cousin Kyra and her boyfriend Mark from London. It was nice to meet them and Antonya enjoyed catching up with all the news. Love to everyone
Hi Everyone Antonya had a little adventure today in the hospital when she went for a chest x-ray. She is having problems breathing so the doctor wanted to check if she has got a chest infection. By the time I left there was no confirmation from the doctor. She has had a few enebulizers today which seem to help with her breathing and Daniel was a little star as he helped the nurse with one of them. He was great listening to the nurse and taking everything in.
Hello everyone! Me again. Yesterday Antonya arrived at St Columba's Hospice for some 'respite' before getting home. She is lovely and relaxed and feels like she is on holiday - a chance for her to catch up on some sleep, read some magazines and get all her meals made for her. I think I might book in for a holiday.
Hello everyone! Sorry for long silence, as you know I am in Slovenia at a meeting held in a monastery (!) with two Internet points for 50 people (!), all working.... But great to hear Antonya is looking great and getting a bit of rest at St Columba and that she will be going home soon. Are there any arrangements in place for her to have assistance at home as she needs? If I can help let me know. Please pass on greetings to Antonya and tell her I will soon be sending photos of the achievement of my group that tonight was awarded a prize for presenting the best "Example" within this meeting context, against 19 other countries!!!! Love to you all, I am back home tomorrow and communication will be easier!! Marina
Hello!
ReplyDeleteHope you are all well. This is a FAB idea and thanks to Marina and Valeria for organising it.
Did not get in to see Antonya today, however from what she was saying yesterday Bunty (Yvonne) was going to be in all day - giving her a bit of a pampering session - legs, feet and hands. Hopefully she will feel like a new woman afterwards.
Received a text this morning from Antonya and she said she had a better nights sleep - thanks to Doc Heyward (looking good) making sure she gets a sleeping tablet each night.
Love to everyone.
Hello!
ReplyDeleteSo Sheena joined us!
Hope the others will follow!
and Antonya herself too!
Good to have good news about her, hopefully she will have another good night of sleep.
I have made it back to Rome and making acquaintance with my flat again...
Speak soon, take care!
Marina
Hi Guys,
ReplyDeleteI agree, this is a great idea. I was going to post a couple of pictures once I suss out how....
Kim
Hi Lisa, good to hear from you! Pictures, I leave Valeria to answer this. Take care. Marina
ReplyDeleteHello everyone again
ReplyDeleteI just wanted to add the reference to www.nosurrenderbreastcancer.com which seems to be a mine of information, ideas and support.
Kim wants to add a link to the Moonwalk, I think it is a great idea!
Valeria, can you do something about this?
Bye For Now, Marina
Hi, the following is from the nosurrenderbreastcancer website. It is for Antonya, but also for all of us to understand. Anyone of us could be next. But, there is HOPE and we have to work on it.
ReplyDeleteTriple Negative Breast Cancer
If you have been diagnosed with triple negative breast cancer then you have also been given a less than enthusiastic prognosis for a bright and happy future. This is simply not true. First, the name it has acquired is terrible. It sounds foreboding. Here is what it means:
You tested negative for estrogen and progesterone receptors. This means that your body’s naturally occurring hormones are not feeding your cancer cells. Because of this you cannot benefit from anti-hormonal drugs such as Tamoxifen and Armidex. Why? Because you don’t need them! Your cancer is impervious to estrogen and its effects so you do not need a drug to stop the estrogen and progesterone in your body.
That is two negatives. Here is the third.
You tested negative for the Her2/nue oncogene. This means your cancer does not overproduce a protein that promotes cancer growth. This is a good thing. You do not want to be Her2 positive. It is good to be Her2 negative. It also means you cannot benefit from Herceptin, the anti-Her2 drug. That is fine. You don’t need it so why should you take it?
So there are your three negatives.
Here are your positives:
Your tumor responds better to chemotherapy than tumors that are estrogen and progesterone positive. Chemo works better on you.
If you remain disease free for four or more years the chances are your cancer will not EVER return.
You do not have to take endocrine therapy drugs that have a whole host of side effects that are not pleasant.
And there is emerging research every day into this type of breast cancer that is making the “poor prognosis” moniker a thing of the past.
Please do not despair with this diagnosis. It CAN be beaten.
Hi!
ReplyDeleteJust been in to see Antonya tonight and she is 'looking good'. Didnpt have such a good night last night, however her Chemo started tonight - Carboplatin/Taxol and she is very positive about it.
Glad you got home safely Marina.
Valeria I have sent you some photos taken while Antonya, Daniel and I were in Rome - hope you get them OK. If not send me a message and I will try again.
Love to everyone.
Sheena xxxxx
Hi Sheena!
ReplyDeleteI tried to chat with you while you posting blog!
AnyWay, I'm trying to arrange an album for photos and hope to give you more useful comments to include photos in the blog. That's also for Kim, of course!
Lovely have news of Antonya. Thnks a lot.
Valeria
Hi Sheila here. Went to see Antonya tonight also and she is very positive about new chemo. She is saying "let the battle begin".
ReplyDeleteDaniel fast asleep but at 9.30 pm asking why he had to go to bed when Calum (who is 15) was still up!! He is coming out with some really funny comments and is very settled at moment.
Love to everyone.
Sheila x
Hi All Went to see Antonya in Hosp today she was having her chemotherapy and she was feeling very positive about it!! Her mum and sister have come down from up north and are going home tomorrow. Antonya is looking great at the moment. thanks to the steroids.... great to be able to speak to you all, and so nice to know that she has such true friends, will speak soon love June
ReplyDeleteHi, Marina here! Good morning to you all!
ReplyDeleteGood to have news of Antonya, I have been rather busy since I got back and going to Slovenia tomorrow. Pass on my greetings and good wishes, but I also hope to txt her soon.
Take care, Marina
Hello!
ReplyDeleteI was in to see Antonya today - she had a bad morning however once the drugs kicked in she was much brighter. I think the girls in the ward - Emma and Bev keep her going and they all have such a good laugh - especially when they are deciding on which song to choose for Hospital Radio.
Also visiting was her cousin Kyra and her boyfriend Mark from London. It was nice to meet them and Antonya enjoyed catching up with all the news.
Love to everyone
Hi Everyone
ReplyDeleteAntonya had a little adventure today in the hospital when she went for a chest x-ray. She is having problems breathing so the doctor wanted to check if she has got a chest infection. By the time I left there was no confirmation from the doctor. She has had a few enebulizers today which seem to help with her breathing and Daniel was a little star as he helped the nurse with one of them. He was great listening to the nurse and taking everything in.
Hello everyone! Me again.
ReplyDeleteYesterday Antonya arrived at St Columba's Hospice for some 'respite' before getting home. She is lovely and relaxed and feels like she is on holiday - a chance for her to catch up on some sleep, read some magazines and get all her meals made for her. I think I might book in for a holiday.
Hello everyone!
ReplyDeleteSorry for long silence, as you know I am in Slovenia at a meeting held in a monastery (!) with two Internet points for 50 people (!), all working....
But great to hear Antonya is looking great and getting a bit of rest at St Columba and that she will be going home soon.
Are there any arrangements in place for her to have assistance at home as she needs?
If I can help let me know.
Please pass on greetings to Antonya and tell her I will soon be sending photos of the achievement of my group that tonight was awarded a prize for presenting the best "Example" within this meeting context, against 19 other countries!!!!
Love to you all, I am back home tomorrow and communication will be easier!!
Marina